Season 15

Agentic Patient 12: Early Diagnosis of Ovarian Cancer due to a Chatbot Use
Faces of Digital HealthOctober 23, 202600:46:35

Agentic Patient 12: Early Diagnosis of Ovarian Cancer due to a Chatbot Use

Her relative said it was nothing. Two weeks of symptom history in ChatGPT said get checked. She was diagnosed at stage one. In early 2023, Alvina Nadeem was 36, a mother of two young boys, and tired in a way she put down to burnout or perimenopause. She was already a heavy ChatGPT user through her work in change management, so she tried something she had never done: she described her symptoms to i...

Agentic Patient 11: ""I stopped letting AI read my daughter's medical records" (Karlien Hollanders)
Faces of Digital HealthSeptember 09, 202600:55:49

Agentic Patient 11: ""I stopped letting AI read my daughter's medical records" (Karlien Hollanders)

She has 408 of her daughter's medical documents. She stopped letting AI read them β€” here's why. Karlien Hollanders is a pharmacist who became her daughter's medical record. When her firstborn went into complete renal failure at two months old and was diagnosed with primary hyperoxaluria type 1, she spent three years moving between Belgian specialist hospitals that could not exchange data with each...

Agentic Patient 9: She built an AI companion for breast cancer patients - and won't upload her records to ChatGPT
Faces of Digital HealthAugust 18, 202600:49:28

Agentic Patient 9: She built an AI companion for breast cancer patients - and won't upload her records to ChatGPT

"I am actually quite wildly uncomfortable with patients using LLMs." She built an AI companion for breast cancer patients β€” and she means it. Ellyn Winters-Robinson was diagnosed with breast cancer in March 2022, months before ChatGPT launched. She wrote a book about it on her iPhone during chemotherapy. That book became AskEllyn, an AI companion used across a hundred countries. In this episode of...

Agentic Patient 7: How to Use AI as a Caregiver β€” Without Letting It Diagnose | Pratik Desai
Faces of Digital HealthJune 19, 202600:46:50

Agentic Patient 7: How to Use AI as a Caregiver β€” Without Letting It Diagnose | Pratik Desai

AI couldn't cure his mother's stage 4 cancer. It caught three near-fatal errors, found a same-day appointment, and helped her leave on her own terms. When Pratik Desai's mother was diagnosed with stage four duodenal adenocarcinoma β€” a rare cancer with roughly 3,000 US cases a year β€” she was nearly discharged without an oncology appointment. Over the next 76 days, Desai used AI at her bedside, from...

We're Overestimating Medical AI β€” and Underestimating the Harm (Jessica Morley, Yale)
Faces of Digital HealthJune 09, 202600:58:28

We're Overestimating Medical AI β€” and Underestimating the Harm (Jessica Morley, Yale)

AI ethicist Jess Morley: these chatbots are giving medical advice β€” so regulate them as medical devices. Part of The Agentic Patient, a Faces of Digital Health series on how patients actually use AI β€” which tools, which prompts, which safeguards. In this episode, host TjaΕ‘a Zajc sits down with Dr Jess Morley, Associate Research Scientist at the Yale Digital Ethics Center and a former AI subject-ma...

I Used AI for My Chronic Illness for a Year. Here's What Went Wrong. (Tjasa Zajc, Agentic Patient)
Faces of Digital HealthMay 14, 202600:33:21

I Used AI for My Chronic Illness for a Year. Here's What Went Wrong. (Tjasa Zajc, Agentic Patient)

The Agentic Patient is here β€” and most healthcare systems don't have a plan for it. In this special reverse-role episode of Faces of Digital Health, Eric Sutherland interviews host TjaΕ‘a Zajc about what a year of using AI through her own chronic illness has actually taught her about patients, doctors, and the future of healthcare AI. 200 million people will ask ChatGPT a health question this week....

The Agentic Patient 4: Finding Insurance and Red Team Analysis
Faces of Digital HealthMay 06, 202600:52:26

The Agentic Patient 4: Finding Insurance and Red Team Analysis

When Demetri Giannikopoulos was diagnosed with multiple sclerosis, his community neurologist handed him a sheet with fifty medication options and told him to pick one. That was a long time ago. Today he's the Chief Innovation Officer at RadAI, overseeing how artificial intelligence gets deployed in radiology across US health systems β€” and he's spent two decades learning how to navigate a healthcar...

The Agentic Patient 3: When ChatGPT from Parents Meets Clinical AI Decision Support Systems
Faces of Digital HealthMay 05, 202600:26:51

The Agentic Patient 3: When ChatGPT from Parents Meets Clinical AI Decision Support Systems

Diana Ferro works at a major pediatric hospital in Italy, working on AI infrastructure, rare diseases, and β€” importantly β€” the International Alliance of Pediatric Centers on AI. Unlike the patient voices earlier in the Agentic Patient series, she sits on the other side of the consulting-room door. Her concerns are sharper, more specific, and more uncomfortable. She is not against patient AI use. S...

The Agentic Patient 2: One Tool, One Job - Cancer management AI toolset
Faces of Digital HealthApril 30, 202600:43:26

The Agentic Patient 2: One Tool, One Job - Cancer management AI toolset

AI tools lost half his chemotherapy log. Another found a procedure in his notes that no doctor had mentioned. In episode 2 of The Agentic Patient, Faces of Digital Health speaks with Russ Read-Barrow, who has lived with bowel cancer since 2021 and is now treated for stage 4 disease. Read-Barrow looks after AI for the business he works for, and has built his own set of AI tools to track chemotherap...