Chasing Glimmers - Whats Glimmering with Katie Lloyd

[00:00:03] [SPEAKER_03]: I'm Effie Parks. Welcome to Once Upon A Gene, a podcast. This is a place I created for us

[00:00:10] [SPEAKER_03]: to connect and share the stories of our not-so-typical lives. Raising kids who are born with rare

[00:00:15] [SPEAKER_03]: genetic syndromes and other types of disabilities can feel pretty isolating. What I know for

[00:00:21] [SPEAKER_03]: sure is that when we can hear the triumphs and challenges from others who get it, we

[00:00:26] [SPEAKER_03]: can find a lot more laughter, a lot more hope, and feel a lot less alone. I believe

[00:00:32] [SPEAKER_03]: there are some magical healing powers that can happen for all of us through sharing our

[00:00:36] [SPEAKER_03]: stories and I'll take all the help I can get. Once Upon A Gene is proud to be part

[00:00:45] [SPEAKER_00]: of Bloodstream Media. Living in a family affected by rare and chronic illness can

[00:00:50] [SPEAKER_00]: be isolating, and sometimes the best medicine is connecting to the voices of people who

[00:00:55] [SPEAKER_00]: share your experience. This is why Bloodstream Media produces podcasts, blogs, and other

[00:01:00] [SPEAKER_00]: forms of content for patients, families, and clinicians impacted by rare and chronic

[00:01:05] [SPEAKER_00]: diseases. Visit Bloodstream Media dot com to learn more.

[00:01:09] [SPEAKER_03]: Hello my friends and welcome back to the show. This is Once Upon A Gene and I'm

[00:01:12] [SPEAKER_03]: your host Effie Parks. I want to make sure that you heard episode number 237.

[00:01:18] [SPEAKER_03]: I give you a little pep talk about coming to the Global Gene Summit this September

[00:01:24] [SPEAKER_03]: in Kansas City. Listen to the episode, think about it, noodle it around if you've

[00:01:29] [SPEAKER_03]: never been to a conference. This is like the warm embrace that you're looking for.

[00:01:33] [SPEAKER_03]: So if you can come, please come. If you have any questions about it, DM me and if

[00:01:38] [SPEAKER_03]: you're just going to pull off a band-aid and book the trip, don't forget to use

[00:01:42] [SPEAKER_03]: code friendofeffie for 15% off your registration. It's going to be an amazing time and I

[00:01:49] [SPEAKER_03]: can't wait to see you. You're going to learn a lot, you're going to meet the

[00:01:51] [SPEAKER_03]: people and you're going to come back just invigorated and excited and finding a

[00:01:55] [SPEAKER_03]: whole new community. So please come. Episode number 237. I'll link it in the

[00:01:59] [SPEAKER_03]: show notes here. I'm talking to my friend Katie today from A Very Rare Adventure.

[00:02:04] [SPEAKER_03]: It is our glimmer episode. We're kind of just talk and shop today. We don't

[00:02:08] [SPEAKER_03]: really have anything super organized in this episode but I hope you enjoy

[00:02:12] [SPEAKER_03]: our conversation anyways. I hope it gives you something to think about. If

[00:02:15] [SPEAKER_03]: you have any ideas or thoughts on it, please send Katie or myself a message.

[00:02:20] [SPEAKER_03]: We would love to hear from you and all I can say is my kids are going

[00:02:24] [SPEAKER_03]: back to school in one week and I can't wait. I can't wait. I'm itching to put

[00:02:33] [SPEAKER_03]: all of my love back into my podcast and to get my series all lined up again

[00:02:38] [SPEAKER_03]: and just go full steam. I've obviously taken quite a break here and there

[00:02:43] [SPEAKER_03]: throughout this summer and it felt good for lots of reasons to just not

[00:02:49] [SPEAKER_03]: have the pressure of working and being on the internet but I also know

[00:02:52] [SPEAKER_03]: it was very bad and yeah it was my last it was my last summer with Ezzy

[00:02:56] [SPEAKER_03]: before she was a kindergartener so I just said screw all of the stuff

[00:03:01] [SPEAKER_03]: outside of my two kids. I'm gonna spend as much time with them as

[00:03:04] [SPEAKER_03]: possible and love it as much as possible and it was great and I'm

[00:03:07] [SPEAKER_03]: glad I made that decision. I'm looking forward to getting back into

[00:03:13] [SPEAKER_03]: the ears of you wherever you listen to my podcast in the car, on a walk,

[00:03:17] [SPEAKER_03]: at the gym, in the shower, at the middle of the night, anywhere. I miss you and I

[00:03:23] [SPEAKER_03]: hope you enjoyed my conversation with Katie and we will chat soon. Please

[00:03:28] [SPEAKER_03]: enjoy our conversation. Katie's back! Maybe I'll get you an intro song

[00:03:32] [SPEAKER_03]: with who's back. Katie's back. Hi Katie how are you? Hi Ezzy. I've had

[00:03:37] [SPEAKER_01]: better evenings but I am here. You are here. We have made it back together

[00:03:42] [SPEAKER_01]: to provide the craziness of life so that's my first glimmer of the day.

[00:03:48] [SPEAKER_03]: Summer is a special special time and yeah it's like still sort of coffee

[00:03:52] [SPEAKER_03]: time for me, it's bedtime for you, you know I'm in Seattle, you're in

[00:03:55] [SPEAKER_03]: Switzerland so it's not the most easy schedule for us but we we figure

[00:03:59] [SPEAKER_01]: it out. We're making it work. I mean we can make some crazy things work in

[00:04:04] [SPEAKER_03]: life so we can do this. Well I'm gonna let you talk about your no good

[00:04:09] [SPEAKER_01]: day. So we are actually in week two of back to school here. We only have five

[00:04:14] [SPEAKER_01]: weeks of summer holidays which sounds great but we get three weeks of autumn

[00:04:18] [SPEAKER_01]: holidays so they just make up for it later in the year and for those of

[00:04:22] [SPEAKER_01]: you listening who don't know I have a five-year-old who has a rare disease

[00:04:26] [SPEAKER_01]: called De Santo Shinawi syndrome and what comes with that is quite a lot

[00:04:30] [SPEAKER_01]: of behavioral issues including aggression so this evening was

[00:04:34] [SPEAKER_01]: particularly aggressive and difficult. Just one of those days we think this is

[00:04:40] [SPEAKER_01]: really hard and all you want to do at the end of day is just crawl under a

[00:04:43] [SPEAKER_01]: rock and hide and not speak to anyone but you know actually talking to you

[00:04:49] [SPEAKER_01]: Effie and just I don't know doing something different and not hiding is

[00:04:52] [SPEAKER_01]: actually really lifting up my mood when you know ten minutes ago I

[00:04:55] [SPEAKER_01]: thought maybe I should just get in the bath and you know boil myself a

[00:05:00] [SPEAKER_01]: bit to to relax from the day but this I think is what I really need and

[00:05:04] [SPEAKER_01]: that's kind of what I want to talk about today just at the beginning and say you

[00:05:07] [SPEAKER_01]: know sometimes when you're having a really really tough day in the world

[00:05:11] [SPEAKER_01]: of rare disease or parenting a child with with disabilities or anything

[00:05:17] [SPEAKER_01]: tricky you know trying to find the glimmers as we talked about last time

[00:05:21] [SPEAKER_01]: is so helpful because it just as we mentioned last time you know pulls you

[00:05:27] [SPEAKER_01]: out the trenches and sometimes all you want to do is lie there and just

[00:05:31] [SPEAKER_01]: follow around in the mud and but already we've only just begun and

[00:05:36] [SPEAKER_01]: starting to feel better about you know the rough evening.

[00:05:40] [SPEAKER_03]: Well I am so glad that I get to be on the other end of that I mean as you

[00:05:43] [SPEAKER_03]: know you could have crawled under any rock or went in the tub and it would

[00:05:46] [SPEAKER_03]: been fine and we would have figured it out but selfishly I'm happy that

[00:05:50] [SPEAKER_03]: you're here with me because you just made me smile too and I feel so much

[00:05:53] [SPEAKER_03]: better already. It's funny because actually yesterday was opposite for me I

[00:05:58] [SPEAKER_03]: did choose the rock I was so off yesterday for whatever reason lack of

[00:06:05] [SPEAKER_03]: sleep a lot and just a lot going on in the last couple weeks and Ford was

[00:06:08] [SPEAKER_03]: extra yesterday with the behavior and I was just really angry at the world

[00:06:14] [SPEAKER_03]: that I couldn't take my kids to the park unless someone was there to help

[00:06:17] [SPEAKER_03]: me and there wasn't anyone around to help me yesterday and so I got like

[00:06:20] [SPEAKER_03]: a little I got a little pissy about it and I decided when my husband got

[00:06:26] [SPEAKER_03]: that I was just gonna go into my room and put on a face mask and ignore

[00:06:30] [SPEAKER_03]: everyone so I did kind of climb under that rock and then I sent a couple

[00:06:35] [SPEAKER_03]: Marco Polo's to my friends with my face mask that was way too big for

[00:06:39] [SPEAKER_03]: my face so I guess I laughed a little bit but I did totally choose

[00:06:42] [SPEAKER_03]: my room and it crawled under my blankets and left my family to their

[00:06:46] [SPEAKER_01]: own devices. That's just what you need and you have to listen to

[00:06:50] [SPEAKER_01]: yourself and just do what you need to do and that sounded like you did

[00:06:53] [SPEAKER_01]: exactly what you needed at that moment.

[00:06:56] [SPEAKER_01]: Yeah so it was fun.

[00:06:58] [SPEAKER_01]: You know what we want to talk about today is ways of being able to

[00:07:01] [SPEAKER_01]: find the glimmers and one of the ways that we both agree on is by

[00:07:06] [SPEAKER_01]: taking a break and I think when you take a break and we're going

[00:07:10] [SPEAKER_01]: to talk about the different ways a person can do that and that we do

[00:07:13] [SPEAKER_01]: that and what that means to us when you do take a break however

[00:07:16] [SPEAKER_01]: that may look I think you start coming out kind of naturally and

[00:07:20] [SPEAKER_01]: you can almost breathe again and look back and say wow look where I was

[00:07:26] [SPEAKER_01]: and look where I am and that break is just so important to transition

[00:07:30] [SPEAKER_01]: away from where you were.

[00:07:32] [SPEAKER_03]: You sent me a few really beautiful voice messages on your actual

[00:07:36] [SPEAKER_03]: break that you got recently do you want to talk about it?

[00:07:39] [SPEAKER_01]: We were very fortunate at the beginning of summer for the first

[00:07:42] [SPEAKER_01]: two weeks my mother-in-law flew in from Germany so most of our

[00:07:46] [SPEAKER_01]: family lives in other countries or should I say we live in a

[00:07:50] [SPEAKER_01]: She flew in for two weeks and she is the kind of mother-in-law who

[00:07:54] [SPEAKER_01]: will just muck in from the minute she walks in the door.

[00:07:57] [SPEAKER_01]: She will do the washing up.

[00:07:58] [SPEAKER_01]: She will hang your underwear on the washing line.

[00:08:01] [SPEAKER_01]: She does not care.

[00:08:02] [SPEAKER_01]: She will help.

[00:08:03] [SPEAKER_01]: She will get down on the floor and play with the kids.

[00:08:05] [SPEAKER_01]: She's just wonderful.

[00:08:07] [SPEAKER_01]: And so for my 35th birthday a few months ago my husband paid

[00:08:11] [SPEAKER_01]: for a night away in a hotel with a friend of mine and in an

[00:08:14] [SPEAKER_01]: ideal world we would have gotten together but we can't leave

[00:08:17] [SPEAKER_01]: both kids with my mother-in-law and we need two adults.

[00:08:19] [SPEAKER_01]: So she was there with my husband and I drove to the mountains

[00:08:22] [SPEAKER_01]: with my friend and we spent the night in this beautiful like

[00:08:26] [SPEAKER_01]: Swiss mountain hotel and we had a great time.

[00:08:30] [SPEAKER_01]: And you know I was driving back and I just had this

[00:08:33] [SPEAKER_01]: epiphany so just want you to picture this.

[00:08:36] [SPEAKER_01]: Imagine a very, very white, very ginger 35 year old mother

[00:08:42] [SPEAKER_01]: of two driving in a very family style car,

[00:08:46] [SPEAKER_01]: a very beautiful Skoda through the Swiss countryside and I'm

[00:08:50] [SPEAKER_01]: listening to a song that most people would not associate a

[00:08:53] [SPEAKER_01]: person looking like me.

[00:08:54] [SPEAKER_01]: I was listening to Gangster's Paradise.

[00:08:56] [SPEAKER_03]: Full blast singing as he do.

[00:09:00] [SPEAKER_03]: When you sing Gangster's Paradise do you have an

[00:09:03] [SPEAKER_03]: accent when you sing it?

[00:09:04] [SPEAKER_03]: I do and I think everyone would laugh so I will not

[00:09:08] [SPEAKER_01]: repeat that.

[00:09:09] [SPEAKER_01]: So singing along to Gangster's Paradise with a

[00:09:11] [SPEAKER_01]: British accent and you know Switzerland is beautiful.

[00:09:13] [SPEAKER_01]: I'm driving to the Swiss countryside.

[00:09:15] [SPEAKER_01]: There's this river flowing alongside me.

[00:09:17] [SPEAKER_01]: There's someone kayaking down the river.

[00:09:19] [SPEAKER_01]: There are people paragliding from the mountains and

[00:09:21] [SPEAKER_01]: landing around me.

[00:09:22] [SPEAKER_01]: It's like something out of a film and I was like

[00:09:25] [SPEAKER_01]: everything is amazing.

[00:09:27] [SPEAKER_01]: Everything is beautiful.

[00:09:28] [SPEAKER_01]: And I thought, I think I'm only seeing everything in this

[00:09:31] [SPEAKER_01]: light.

[00:09:32] [SPEAKER_01]: I mean it was quite amazing but because I'd been away

[00:09:35] [SPEAKER_01]: you know and at that point we were just not sleeping.

[00:09:39] [SPEAKER_01]: Sleep was just a disaster with both children.

[00:09:42] [SPEAKER_01]: We were exhausted.

[00:09:43] [SPEAKER_01]: We were dealing with various, you know, various crazy

[00:09:47] [SPEAKER_01]: things in life.

[00:09:48] [SPEAKER_01]: I had this break and I came back and it was just this

[00:09:50] [SPEAKER_01]: epiphany like because I've had a break I can totally

[00:09:54] [SPEAKER_01]: see all these amazing things for what they are.

[00:09:56] [SPEAKER_01]: And it just made me see the importance of taking

[00:10:00] [SPEAKER_01]: a break from life.

[00:10:02] [SPEAKER_01]: And I just want to also add not everybody has

[00:10:05] [SPEAKER_01]: access to those kind of resources.

[00:10:07] [SPEAKER_01]: I realize a night in a hotel is either

[00:10:09] [SPEAKER_01]: financially quite impossible or just logistically.

[00:10:12] [SPEAKER_01]: You know we can only do this because we had a person

[00:10:15] [SPEAKER_01]: that we trust fly in to take care of our kids with

[00:10:18] [SPEAKER_01]: my husband.

[00:10:20] [SPEAKER_01]: And so I just want to put that out there.

[00:10:21] [SPEAKER_01]: I know that's not possible for everybody but I do

[00:10:24] [SPEAKER_01]: think that's not the only way of taking a break.

[00:10:27] [SPEAKER_01]: That was just a really big obvious example.

[00:10:30] [SPEAKER_01]: Yes I walk back in the door feeling all energized

[00:10:33] [SPEAKER_01]: and wonderful.

[00:10:34] [SPEAKER_01]: I'm watching the door and my husband walked

[00:10:36] [SPEAKER_01]: straight into the bedroom and went to sleep.

[00:10:38] [SPEAKER_01]: He was just exhausted.

[00:10:39] [SPEAKER_01]: So there is the flip side that when you do take

[00:10:42] [SPEAKER_01]: a break sometimes it takes a toll on the other

[00:10:45] [SPEAKER_01]: caregiver.

[00:10:46] [SPEAKER_01]: But it was very much worth it.

[00:10:49] [SPEAKER_01]: And that was my epiphany.

[00:10:50] [SPEAKER_03]: Oh my gosh I love that so much.

[00:10:52] [SPEAKER_03]: And yes there's always kind of a rude awakening

[00:10:54] [SPEAKER_03]: when you get home but it's still so worth it

[00:10:57] [SPEAKER_03]: because of the having a little bit of a break

[00:10:59] [SPEAKER_03]: and having that moment of just total freedom

[00:11:02] [SPEAKER_03]: and just the glory of looking around and being

[00:11:06] [SPEAKER_03]: able to just breathe it all in and remember

[00:11:08] [SPEAKER_03]: what life is all about sometimes is it lasts.

[00:11:11] [SPEAKER_03]: It lasts so long right.

[00:11:13] [SPEAKER_03]: I think that you can savor it so much when

[00:11:16] [SPEAKER_03]: it's not something that you get all the time

[00:11:17] [SPEAKER_03]: and it's not something that you get without

[00:11:20] [SPEAKER_03]: a lot of sacrifice.

[00:11:22] [SPEAKER_01]: Right I think sometimes just seeing oh there's

[00:11:24] [SPEAKER_01]: a world out there outside of these four walls

[00:11:27] [SPEAKER_01]: and I'm a person who has other interests

[00:11:30] [SPEAKER_01]: and passions and hobbies outside of these walls.

[00:11:35] [SPEAKER_01]: It's life changing even if it you say it does

[00:11:39] [SPEAKER_01]: last doesn't last forever but it does

[00:11:41] [SPEAKER_01]: definitely power you through.

[00:11:43] [SPEAKER_03]: Yeah it reminds me so anyone who's listening

[00:11:46] [SPEAKER_03]: who is from the HNR&P community knows what

[00:11:49] [SPEAKER_03]: I'm talking about because I just delivered

[00:11:51] [SPEAKER_03]: it in part of my talk there.

[00:11:53] [SPEAKER_03]: But I sent you an episode so there's this

[00:11:55] [SPEAKER_03]: neuroscientist named Tali Shabit and she

[00:11:59] [SPEAKER_03]: has a book called Look Again and she talks

[00:12:01] [SPEAKER_03]: about this concept of taking things in small

[00:12:05] [SPEAKER_03]: bits rather than big momentous events.

[00:12:09] [SPEAKER_03]: So like hey stop chasing your two week vacation

[00:12:13] [SPEAKER_03]: out of the year like that's gonna be

[00:12:15] [SPEAKER_03]: this massively relaxing wondrous thing

[00:12:19] [SPEAKER_03]: because scientifically not going to impact

[00:12:21] [SPEAKER_03]: your well being as much as it would

[00:12:23] [SPEAKER_03]: is if you were taking small frequent

[00:12:26] [SPEAKER_03]: bits of these things so like maybe a road

[00:12:29] [SPEAKER_03]: trip for a day maybe even just to hike

[00:12:32] [SPEAKER_03]: up the mountains that day but having

[00:12:34] [SPEAKER_03]: little things on your books more frequent

[00:12:36] [SPEAKER_03]: like weekend trips if possible or things

[00:12:40] [SPEAKER_03]: like that and that you're gonna get

[00:12:41] [SPEAKER_03]: so much bang for your buck emotionally

[00:12:43] [SPEAKER_03]: and physically and mentally than you will

[00:12:47] [SPEAKER_03]: by having some grand type of self care

[00:12:51] [SPEAKER_03]: sort of event in your life.

[00:12:53] [SPEAKER_03]: And it was really I just like the way

[00:12:55] [SPEAKER_03]: she explained it so much so definitely

[00:12:57] [SPEAKER_03]: go like find her, find her on a podcast

[00:12:59] [SPEAKER_03]: find her book because it makes so much

[00:13:02] [SPEAKER_03]: sense and I think about like especially

[00:13:05] [SPEAKER_03]: back in the day when you would have

[00:13:06] [SPEAKER_03]: things on your calendar look forwards

[00:13:08] [SPEAKER_03]: to eat things you know like it keeps

[00:13:10] [SPEAKER_03]: you happy up to it during it and then

[00:13:13] [SPEAKER_03]: even after because there's probably

[00:13:15] [SPEAKER_03]: something else on your books a little

[00:13:17] [SPEAKER_03]: later and just having smaller bits

[00:13:18] [SPEAKER_03]: of things you just get more bang for your buck.

[00:13:21] [SPEAKER_01]: Yeah I think that's it's massive.

[00:13:24] [SPEAKER_03]: So if they haven't already turned

[00:13:25] [SPEAKER_03]: it off or they're thinking about it

[00:13:27] [SPEAKER_03]: or they're swearing at us in the car

[00:13:29] [SPEAKER_03]: what do you say to those parents

[00:13:32] [SPEAKER_03]: who are like it's literally impossible

[00:13:34] [SPEAKER_03]: I could never go anywhere

[00:13:35] [SPEAKER_03]: I could never do anything I don't have

[00:13:38] [SPEAKER_03]: the money I don't have the time

[00:13:39] [SPEAKER_03]: I don't have the caregiver.

[00:13:41] [SPEAKER_03]: What do you tell the families

[00:13:42] [SPEAKER_03]: who have a situation like that?

[00:13:46] [SPEAKER_01]: I think they have to ask themselves

[00:13:47] [SPEAKER_01]: two questions and the first would be

[00:13:49] [SPEAKER_01]: what does a break mean to me

[00:13:51] [SPEAKER_01]: and if that means you know we can

[00:13:53] [SPEAKER_01]: the Maldives on the beach with cocktails

[00:13:55] [SPEAKER_01]: great but the second question is

[00:13:57] [SPEAKER_01]: what can I logistically do and if

[00:14:00] [SPEAKER_01]: yeah answer to the first question

[00:14:01] [SPEAKER_01]: is just impossible you've got to be

[00:14:03] [SPEAKER_01]: realistic you know I went away for

[00:14:06] [SPEAKER_01]: this night away

[00:14:08] [SPEAKER_01]: and that was the first time ever

[00:14:10] [SPEAKER_01]: since having you know the kids so

[00:14:13] [SPEAKER_01]: it's not something that I can repeat

[00:14:15] [SPEAKER_01]: regularly although I'm super grateful

[00:14:17] [SPEAKER_01]: that it happened so

[00:14:17] [SPEAKER_01]: I have to be realistic how am I

[00:14:19] [SPEAKER_01]: going to take a break when things are

[00:14:21] [SPEAKER_01]: really tough or when I'm

[00:14:23] [SPEAKER_01]: full in parenting and caregiving

[00:14:25] [SPEAKER_01]: and it's the same for them so they

[00:14:26] [SPEAKER_01]: have to maybe start really small I

[00:14:29] [SPEAKER_01]: would say so

[00:14:30] [SPEAKER_01]: of course there are the big things we

[00:14:32] [SPEAKER_01]: mentioned

[00:14:33] [SPEAKER_01]: the hotel away you know I do see some

[00:14:36] [SPEAKER_01]: parents getting away together and

[00:14:38] [SPEAKER_01]: grandparents looking after the kids

[00:14:39] [SPEAKER_01]: for a week which is you know the

[00:14:41] [SPEAKER_01]: jackpot but

[00:14:42] [SPEAKER_01]: again that's not going to happen in

[00:14:44] [SPEAKER_01]: my life so I can imagine for a lot

[00:14:46] [SPEAKER_01]: of other people listening that's just

[00:14:47] [SPEAKER_01]: not

[00:14:48] [SPEAKER_01]: not for them so I would go really

[00:14:50] [SPEAKER_01]: really small

[00:14:50] [SPEAKER_01]: and if a break for you can be small too

[00:14:54] [SPEAKER_01]: think about that so I wrote down a few

[00:14:56] [SPEAKER_01]: things

[00:14:56] [SPEAKER_01]: that are small breaks that could be

[00:14:58] [SPEAKER_01]: useful for listeners

[00:14:59] [SPEAKER_01]: the first one I don't know if you

[00:15:01] [SPEAKER_01]: know the book tender by Penny Windsor

[00:15:03] [SPEAKER_01]: no I don't think so so it's a

[00:15:06] [SPEAKER_01]: a book about caregiving

[00:15:07] [SPEAKER_01]: and she recommends

[00:15:10] [SPEAKER_01]: for people who you know that you're

[00:15:13] [SPEAKER_01]: not going to sleep well

[00:15:14] [SPEAKER_01]: I don't get a lot of sleep it

[00:15:15] [SPEAKER_01]: sounds like you don't get a lot of

[00:15:17] [SPEAKER_01]: sleep and probably that's not going to

[00:15:18] [SPEAKER_01]: change for us

[00:15:19] [SPEAKER_01]: so having a nap for me is virtually

[00:15:23] [SPEAKER_01]: impossible during the day

[00:15:24] [SPEAKER_01]: but she said if you can take a yoga

[00:15:27] [SPEAKER_01]: mat

[00:15:28] [SPEAKER_01]: put it on the floor and lie down on it

[00:15:31] [SPEAKER_01]: with or without a blanket whatever

[00:15:32] [SPEAKER_01]: you choose and just

[00:15:34] [SPEAKER_01]: rest and if you lie down with the

[00:15:37] [SPEAKER_01]: idea that you can just

[00:15:38] [SPEAKER_01]: rest you may or may not fall asleep

[00:15:41] [SPEAKER_01]: and that is a way that you can have

[00:15:43] [SPEAKER_01]: a break during the day kind of for

[00:15:46] [SPEAKER_01]: short moments

[00:15:46] [SPEAKER_01]: and I really love that and I

[00:15:48] [SPEAKER_01]: actually start doing it because I

[00:15:49] [SPEAKER_01]: have a lot of anxiety around sleep

[00:15:50] [SPEAKER_01]: and I have a massive problem with

[00:15:53] [SPEAKER_01]: insomnia so quite often for me

[00:15:54] [SPEAKER_01]: I can't take a rest I can't take a

[00:15:56] [SPEAKER_01]: nap even when I

[00:15:57] [SPEAKER_01]: have the time so I just lie down

[00:15:59] [SPEAKER_01]: and say I'm going to have a rest

[00:16:01] [SPEAKER_01]: with no pressure to sleep sometimes

[00:16:03] [SPEAKER_01]: I fall asleep and it's great so I

[00:16:05] [SPEAKER_01]: think that is something

[00:16:06] [SPEAKER_01]: that people can do throughout the

[00:16:08] [SPEAKER_01]: day or every day

[00:16:09] [SPEAKER_01]: if they have a few minutes just to

[00:16:11] [SPEAKER_01]: take a break

[00:16:12] [SPEAKER_01]: on a small scale do you also have

[00:16:15] [SPEAKER_01]: some small

[00:16:16] [SPEAKER_01]: scale break ideas I think? Yeah totally

[00:16:20] [SPEAKER_03]: and I really really really want you to

[00:16:23] [SPEAKER_03]: think of them

[00:16:24] [SPEAKER_03]: as massive breaks again because like

[00:16:26] [SPEAKER_03]: they can

[00:16:27] [SPEAKER_03]: they can really impact you so much

[00:16:29] [SPEAKER_03]: and I know it can feel

[00:16:30] [SPEAKER_03]: like we're getting so cheated

[00:16:32] [SPEAKER_03]: especially when nobody's there to help

[00:16:33] [SPEAKER_03]: us with our kids but

[00:16:35] [SPEAKER_03]: you got to do what you got to do

[00:16:36] [SPEAKER_03]: because again the caregiver is the

[00:16:38] [SPEAKER_03]: most important person in the house

[00:16:39] [SPEAKER_03]: but yeah these little things like

[00:16:42] [SPEAKER_03]: use that iPad and give it to your

[00:16:44] [SPEAKER_03]: kids

[00:16:44] [SPEAKER_03]: when I want to go turn on my workout

[00:16:46] [SPEAKER_03]: mirror I hand

[00:16:47] [SPEAKER_03]: forward his iPad I turn on a show for

[00:16:50] [SPEAKER_03]: Ezi actually last time she literally

[00:16:51] [SPEAKER_03]: came in here and worked out with me it

[00:16:53] [SPEAKER_03]: was amazing

[00:16:54] [SPEAKER_03]: but taking off your shoes and your

[00:16:56] [SPEAKER_03]: socks and going outside

[00:16:57] [SPEAKER_03]: and just walking around in your own

[00:16:59] [SPEAKER_03]: yard and like feeling what your bare

[00:17:01] [SPEAKER_03]: feet feel like

[00:17:01] [SPEAKER_03]: I think that there's something super

[00:17:04] [SPEAKER_03]: magical about

[00:17:05] [SPEAKER_03]: actually connecting to the ground and

[00:17:07] [SPEAKER_03]: to mother earth and to just being

[00:17:08] [SPEAKER_03]: sort of mindful with nature

[00:17:10] [SPEAKER_03]: I like to go outside and water the

[00:17:13] [SPEAKER_03]: plants

[00:17:14] [SPEAKER_03]: like water the trees water the roses

[00:17:16] [SPEAKER_03]: like whatever you have outside

[00:17:18] [SPEAKER_03]: and seriously do it barefoot I'm

[00:17:20] [SPEAKER_03]: telling you like there's something about

[00:17:21] [SPEAKER_03]: it

[00:17:22] [SPEAKER_03]: obviously the the laying down and

[00:17:24] [SPEAKER_03]: being mindful and

[00:17:25] [SPEAKER_03]: resting slash yoga or

[00:17:28] [SPEAKER_03]: any sort of meditation it's not

[00:17:30] [SPEAKER_03]: woohoo it's

[00:17:31] [SPEAKER_03]: it's been around for millions of

[00:17:33] [SPEAKER_03]: years for a reason

[00:17:34] [SPEAKER_03]: it can really make a difference and

[00:17:36] [SPEAKER_03]: even just kind of

[00:17:37] [SPEAKER_03]: training your brain to like shift

[00:17:39] [SPEAKER_03]: those thought patterns or to calm your

[00:17:42] [SPEAKER_03]: nervous system and take those deep

[00:17:43] [SPEAKER_03]: breaths

[00:17:43] [SPEAKER_03]: it's really really a big deal for any

[00:17:46] [SPEAKER_03]: OG listeners here you know that like

[00:17:48] [SPEAKER_03]: one of the things that

[00:17:49] [SPEAKER_03]: was super life-saving and life-giving

[00:17:53] [SPEAKER_03]: to me was learning how to box

[00:17:54] [SPEAKER_03]: breathe which is something they teach

[00:17:56] [SPEAKER_03]: like Navy SEAL people to do to chill

[00:17:58] [SPEAKER_03]: out

[00:17:58] [SPEAKER_03]: it works and I think that it just

[00:18:01] [SPEAKER_03]: builds sort of this like muscle memory

[00:18:03] [SPEAKER_03]: in your body

[00:18:04] [SPEAKER_03]: that when you know you're you're

[00:18:06] [SPEAKER_03]: getting this like fight-or-flight

[00:18:08] [SPEAKER_03]: sensation that there are things like

[00:18:11] [SPEAKER_03]: that to

[00:18:12] [SPEAKER_03]: take yourself back to a to a baseline

[00:18:14] [SPEAKER_03]: that's comfortable to you

[00:18:16] [SPEAKER_03]: or that's like less chaotic and I

[00:18:18] [SPEAKER_03]: think

[00:18:19] [SPEAKER_03]: even just giving yourself a little

[00:18:20] [SPEAKER_03]: chance to regroup

[00:18:22] [SPEAKER_03]: can can really help you out

[00:18:24] [SPEAKER_03]: throughout the day

[00:18:25] [SPEAKER_03]: and it's constant right like it's a

[00:18:27] [SPEAKER_03]: constant practice

[00:18:28] [SPEAKER_03]: and I think the better you get at

[00:18:31] [SPEAKER_03]: practicing

[00:18:31] [SPEAKER_03]: the more naturally it will just come

[00:18:33] [SPEAKER_03]: without you having to feel like

[00:18:35] [SPEAKER_03]: it's another chore

[00:18:36] [SPEAKER_03]: to take that time for yourself 100%

[00:18:40] [SPEAKER_03]: also do want to say though there's a

[00:18:41] [SPEAKER_03]: couple other things like I know some

[00:18:43] [SPEAKER_03]: friends who

[00:18:44] [SPEAKER_03]: do like kind of co-op-y stuff like

[00:18:47] [SPEAKER_03]: they found

[00:18:47] [SPEAKER_03]: other friend moms or friends that

[00:18:50] [SPEAKER_03]: they trust at least or

[00:18:51] [SPEAKER_03]: whatever who know their kids and

[00:18:53] [SPEAKER_03]: they'll swap

[00:18:54] [SPEAKER_03]: so sort of like once a week you

[00:18:57] [SPEAKER_03]: come over and watch

[00:18:58] [SPEAKER_03]: my kids for two hours and then I get

[00:19:00] [SPEAKER_03]: to do whatever I want and then I'll

[00:19:01] [SPEAKER_03]: do it for you

[00:19:02] [SPEAKER_03]: so yes there's like a chore

[00:19:03] [SPEAKER_03]: involved there but it's definitely

[00:19:05] [SPEAKER_03]: worth checking out to see if it's worth

[00:19:07] [SPEAKER_03]: it to you

[00:19:07] [SPEAKER_03]: to do it that way to get a little bit

[00:19:10] [SPEAKER_03]: of respite and

[00:19:11] [SPEAKER_03]: actually you know take yourself out

[00:19:13] [SPEAKER_03]: of the house the situation completely

[00:19:15] [SPEAKER_03]: and go be

[00:19:16] [SPEAKER_03]: be yourself for two hours seeing if

[00:19:18] [SPEAKER_03]: that works

[00:19:19] [SPEAKER_01]: oh I love that I think it's really

[00:19:21] [SPEAKER_01]: important important when you're a

[00:19:22] [SPEAKER_01]: caregiver to have

[00:19:23] [SPEAKER_01]: people outside of yourself and ideally

[00:19:26] [SPEAKER_01]: outside of your partner

[00:19:27] [SPEAKER_01]: that you can leave your child with

[00:19:29] [SPEAKER_01]: because like we need breaks we need

[00:19:31] [SPEAKER_01]: breaks because we cannot

[00:19:33] [SPEAKER_01]: be ourselves we cannot you know see

[00:19:36] [SPEAKER_01]: the positives when we're drowning

[00:19:39] [SPEAKER_01]: but just we just can't

[00:19:40] [SPEAKER_03]: everyone knows how much I believe in

[00:19:42] [SPEAKER_03]: walking I really do for so many reasons

[00:19:44] [SPEAKER_03]: there's actually oh my gosh if you

[00:19:46] [SPEAKER_03]: guys haven't read this book yet you

[00:19:47] [SPEAKER_03]: must read it it's called

[00:19:48] [SPEAKER_03]: do walk it is the most amazing book

[00:19:52] [SPEAKER_03]: and I had to listen to it like two

[00:19:54] [SPEAKER_03]: times in fact I want to listen to it

[00:19:55] [SPEAKER_03]: again

[00:19:55] [SPEAKER_03]: it's this woman named Libby and I

[00:19:57] [SPEAKER_03]: think she lives in Maine or

[00:19:58] [SPEAKER_03]: something

[00:19:59] [SPEAKER_03]: and she has taken a walk every

[00:20:01] [SPEAKER_03]: single morning for like 8,000 days or

[00:20:04] [SPEAKER_03]: something

[00:20:05] [SPEAKER_03]: so far in the book she's never once

[00:20:07] [SPEAKER_03]: missed a day never in her entire life

[00:20:09] [SPEAKER_03]: not even sick not even when it's been

[00:20:11] [SPEAKER_03]: like 25 below

[00:20:12] [SPEAKER_03]: and she like documents it like about

[00:20:15] [SPEAKER_03]: how frozen her toe was that one day

[00:20:17] [SPEAKER_03]: or that there was a blister in her

[00:20:19] [SPEAKER_03]: foot and she talks about

[00:20:20] [SPEAKER_03]: you know the the things that your

[00:20:22] [SPEAKER_03]: mind can get stuck on or

[00:20:23] [SPEAKER_03]: not get stuck on and then blah blah

[00:20:25] [SPEAKER_03]: blah I know I'm going on about the

[00:20:26] [SPEAKER_03]: book but

[00:20:27] [SPEAKER_03]: it was the most amazing story

[00:20:30] [SPEAKER_03]: and listening to just her perseverance

[00:20:32] [SPEAKER_03]: through it all

[00:20:33] [SPEAKER_03]: and her clarity that she had and how

[00:20:35] [SPEAKER_03]: this habit

[00:20:36] [SPEAKER_03]: changed her life in so many ways but

[00:20:39] [SPEAKER_03]: especially

[00:20:40] [SPEAKER_03]: that she never ever regretted taking

[00:20:43] [SPEAKER_03]: one of those walks even though some

[00:20:44] [SPEAKER_03]: of them were totally treacherous

[00:20:46] [SPEAKER_03]: I think that there's so much to be

[00:20:49] [SPEAKER_03]: learned

[00:20:49] [SPEAKER_03]: from that that methodical movement in

[00:20:52] [SPEAKER_03]: our bodies

[00:20:53] [SPEAKER_03]: if it's at all possible to make a

[00:20:55] [SPEAKER_03]: walk a habit in any way

[00:20:57] [SPEAKER_03]: obviously not every day straight for

[00:20:58] [SPEAKER_03]: eight years like she did but

[00:21:00] [SPEAKER_03]: it is everything and I will never ever

[00:21:02] [SPEAKER_03]: give up my walk for

[00:21:03] [SPEAKER_01]: almost anything yeah since it's summer

[00:21:05] [SPEAKER_01]: here and we have like the light

[00:21:07] [SPEAKER_01]: evenings

[00:21:07] [SPEAKER_01]: I've been trying to go on a walk once

[00:21:09] [SPEAKER_01]: a week and I can't go till like 8 p.m

[00:21:12] [SPEAKER_01]: because I have to

[00:21:13] [SPEAKER_01]: get the kids to sleep and clean the

[00:21:15] [SPEAKER_01]: house first sometimes half past eight

[00:21:16] [SPEAKER_01]: but

[00:21:17] [SPEAKER_01]: like it's probably the highlight of my

[00:21:18] [SPEAKER_01]: week and I've done it three weeks

[00:21:20] [SPEAKER_01]: in a row

[00:21:20] [SPEAKER_01]: and once winter comes and it's you

[00:21:22] [SPEAKER_01]: know zero degrees and

[00:21:24] [SPEAKER_01]: snowing outside and pitch black I'm

[00:21:26] [SPEAKER_01]: not going to go walk in the fields

[00:21:27] but

[00:21:28] [SPEAKER_01]: like while I can I'm going to do it and

[00:21:30] [SPEAKER_01]: it's just great

[00:21:31] [SPEAKER_01]: I definitely come back on a high as you

[00:21:34] [SPEAKER_01]: say I never come back

[00:21:35] [SPEAKER_01]: feeling worse than when I left but I

[00:21:37] [SPEAKER_01]: have a question for you Effie do you

[00:21:39] [SPEAKER_01]: have

[00:21:39] [SPEAKER_01]: any guilty pleasure take a break

[00:21:43] [SPEAKER_03]: techniques oh man

[00:21:47] [SPEAKER_03]: I used to I used to have a guilty

[00:21:50] [SPEAKER_03]: pressure but then it closed

[00:21:51] [SPEAKER_03]: let's see guilty pleasure so like

[00:21:54] [SPEAKER_03]: pleasures that make me super happy

[00:21:56] [SPEAKER_03]: that maybe I shouldn't be doing

[00:21:58] [SPEAKER_03]: I don't know I guess now

[00:22:02] [SPEAKER_03]: I will just go places when I don't need

[00:22:04] [SPEAKER_03]: to go there

[00:22:04] [SPEAKER_03]: and like run an errand so I'll be

[00:22:07] [SPEAKER_03]: like hey babe I know your life is

[00:22:09] [SPEAKER_03]: busy too but

[00:22:10] [SPEAKER_03]: I'm gonna go to Costco like and I

[00:22:12] [SPEAKER_03]: don't need to go to Costco

[00:22:13] [SPEAKER_03]: but for some reason I it makes me

[00:22:15] [SPEAKER_03]: happy to go there

[00:22:16] [SPEAKER_03]: I used to go to that Mexican

[00:22:17] [SPEAKER_03]: restaurant I used to lie and say I

[00:22:19] [SPEAKER_03]: was going to target

[00:22:20] [SPEAKER_03]: because there was a Mexican

[00:22:21] [SPEAKER_03]: restaurant in the same parking lot

[00:22:22] [SPEAKER_03]: and I'd go and eat chips and salsa

[00:22:24] [SPEAKER_03]: and have a margarita

[00:22:25] [SPEAKER_03]: that was my like ultimate favorite

[00:22:26] [SPEAKER_03]: guilty pleasure that I did

[00:22:28] [SPEAKER_03]: but yeah I guess now if I get a chance

[00:22:30] [SPEAKER_03]: and I really don't feel

[00:22:31] [SPEAKER_03]: that guilty about it is I'll just

[00:22:35] [SPEAKER_03]: yeah lie about an errand that I

[00:22:37] [SPEAKER_03]: need to go do and I'll just like

[00:22:38] [SPEAKER_03]: turn on my music and listen to

[00:22:40] [SPEAKER_03]: Gangster's Paradise and roll down

[00:22:42] [SPEAKER_03]: the window and drive fast

[00:22:43] [SPEAKER_01]: I love it so mine has to be

[00:22:47] [SPEAKER_01]: trash tv it's just

[00:22:50] [SPEAKER_01]: the ultimate escapism I think when

[00:22:52] [SPEAKER_01]: you like

[00:22:53] [SPEAKER_01]: I just can't I can't do this I can't do

[00:22:57] [SPEAKER_01]: that I can't leave the house

[00:22:58] [SPEAKER_01]: but I want to do something for myself

[00:23:00] [SPEAKER_01]: for me it's trashy awful tv that

[00:23:04] [SPEAKER_01]: people would look at me in horror if

[00:23:07] [SPEAKER_01]: I told them I watched

[00:23:08] [SPEAKER_01]: you you watch that yes I do and you

[00:23:10] [SPEAKER_01]: know what no I enjoy it

[00:23:12] [SPEAKER_01]: I enjoy every minute good for you

[00:23:14] [SPEAKER_01]: ultimate escapism

[00:23:17] [SPEAKER_03]: there are so many people like

[00:23:19] [SPEAKER_03]: cheering yes

[00:23:20] [SPEAKER_03]: they there's lots of people who love

[00:23:22] [SPEAKER_03]: that oh my gosh that's so funny Katie

[00:23:25] [SPEAKER_03]: I could see you watching that one

[00:23:26] [SPEAKER_03]: when I was a hairstylist that's all

[00:23:28] [SPEAKER_03]: the all the clients ever talked about

[00:23:29] [SPEAKER_03]: was the trashy tv they were talking

[00:23:31] [SPEAKER_03]: they were watching so I learned a lot

[00:23:33] [SPEAKER_03]: for many years

[00:23:34] [SPEAKER_03]: but if I even remotely had anything

[00:23:37] [SPEAKER_03]: on like that I can hear Casey like

[00:23:39] [SPEAKER_03]: a mile away going

[00:23:40] [SPEAKER_03]: oh my god what are you watching not

[00:23:43] [SPEAKER_03]: worth it to me

[00:23:44] [SPEAKER_03]: everyone should download Marco Polo

[00:23:46] [SPEAKER_03]: it's an app I've been using forever

[00:23:48] [SPEAKER_03]: and Ford uses it now

[00:23:50] [SPEAKER_03]: but like you get to just see your

[00:23:52] [SPEAKER_03]: friends face

[00:23:54] [SPEAKER_03]: and you don't owe them anything like

[00:23:56] [SPEAKER_03]: it's not like a respond to my call

[00:23:58] [SPEAKER_03]: respond to my video message it's just

[00:24:00] [SPEAKER_03]: like a video message and you just

[00:24:01] [SPEAKER_03]: kind of talk like you're having a

[00:24:02] [SPEAKER_03]: regular conversation and you just get

[00:24:04] [SPEAKER_03]: to it when you can

[00:24:05] [SPEAKER_03]: but the thing I love about it so

[00:24:06] [SPEAKER_03]: much is that I feel like I actually

[00:24:08] [SPEAKER_03]: get to see my friends

[00:24:10] [SPEAKER_03]: rather than have like this black

[00:24:12] [SPEAKER_03]: text screen behind us

[00:24:13] [SPEAKER_03]: for all of our lives and then maybe

[00:24:14] [SPEAKER_03]: see them once a year I get to see

[00:24:15] [SPEAKER_03]: what you're wearing that day I get to

[00:24:17] [SPEAKER_03]: see

[00:24:17] [SPEAKER_03]: you know the background and this if

[00:24:19] [SPEAKER_03]: it's sunny there well you're telling me

[00:24:21] [SPEAKER_03]: that you're going to Costco

[00:24:22] [SPEAKER_03]: or telling me a funny line from your

[00:24:24] [SPEAKER_03]: trashy show like everyone should have

[00:24:26] [SPEAKER_03]: Marco Polo and communicate with your

[00:24:28] [SPEAKER_03]: besties on there

[00:24:29] [SPEAKER_03]: because it just builds so much more of

[00:24:32] [SPEAKER_03]: a connective relationship in my

[00:24:34] [SPEAKER_03]: opinion

[00:24:34] [SPEAKER_03]: and now I'm going to put you on my

[00:24:36] [SPEAKER_03]: Marco Polo Katie

[00:24:36] [SPEAKER_01]: you see I keep hearing about it maybe

[00:24:38] [SPEAKER_01]: it's more of an American thing but

[00:24:40] [SPEAKER_01]: I'm curious and I think you're right

[00:24:41] [SPEAKER_01]: you know yeah see if you have it

[00:24:43] [SPEAKER_01]: it is tricky to get out you know

[00:24:45] [SPEAKER_01]: and a lot of the things are saying

[00:24:47] [SPEAKER_01]: rely on having support systems

[00:24:50] [SPEAKER_01]: um which not many people

[00:24:54] [SPEAKER_01]: have access to or have limited access

[00:24:56] [SPEAKER_01]: to so I think that's kind of taking

[00:24:57] [SPEAKER_01]: a break in a way within your own home

[00:24:59] [SPEAKER_01]: you can put your feet up maybe

[00:25:01] [SPEAKER_01]: while your kid's napping or I don't

[00:25:03] [SPEAKER_01]: know doing activity like you say you

[00:25:05] [SPEAKER_01]: give them an iPad and you can just

[00:25:06] [SPEAKER_01]: you know get on and yeah feel like

[00:25:09] [SPEAKER_01]: you're talking to your friends

[00:25:10] [SPEAKER_03]: yeah I think the moral of this story

[00:25:13] [SPEAKER_03]: is just take the time reflect connect

[00:25:16] [SPEAKER_03]: yourself your surroundings like

[00:25:18] [SPEAKER_03]: whatever it is we're going to be

[00:25:19] [SPEAKER_03]: living on this high wire for

[00:25:23] [SPEAKER_03]: as long as we possibly can and we

[00:25:26] [SPEAKER_03]: just can't let it start on fire

[00:25:28] [SPEAKER_03]: and we can't forget who we are we

[00:25:30] [SPEAKER_03]: have to do something you have to do

[00:25:32] [SPEAKER_03]: something

[00:25:32] [SPEAKER_03]: you really do well Katie is there

[00:25:34] [SPEAKER_03]: anything else you want to talk about

[00:25:35] [SPEAKER_03]: today

[00:25:35] [SPEAKER_03]: do you have a lasting uh lovely

[00:25:39] [SPEAKER_01]: tidbit nothing is impossible I think we

[00:25:41] [SPEAKER_01]: can all

[00:25:43] [SPEAKER_01]: find small but big at the same time

[00:25:46] [SPEAKER_01]: as you said ways to take a break

[00:25:48] [SPEAKER_01]: and to step back so that we can see

[00:25:50] [SPEAKER_01]: the glimmers

[00:25:52] [SPEAKER_01]: what about you Effie if you live

[00:25:54] [SPEAKER_03]: anywhere close to me you can drop your

[00:25:57] [SPEAKER_03]: kids off for two hours at some point

[00:25:58] [SPEAKER_03]: I promise just book it with me and

[00:26:00] [SPEAKER_03]: you can go somewhere for two hours and

[00:26:01] [SPEAKER_03]: I will love your children as long as

[00:26:04] [SPEAKER_03]: they take your kids back

[00:26:06] [SPEAKER_03]: at another point they don't have to

[00:26:07] [SPEAKER_03]: take mine I will offer it to anyone

[00:26:09] [SPEAKER_03]: who lives here if you want to book

[00:26:11] [SPEAKER_03]: it with me to go take two hours for

[00:26:13] [SPEAKER_03]: yourself you can bring your kids to my

[00:26:14] [SPEAKER_03]: house and I will lovingly take care of

[00:26:17] [SPEAKER_03]: them

[00:26:18] [SPEAKER_01]: so I'm booking a one-way ticket to

[00:26:20] [SPEAKER_01]: Seattle

[00:26:22] [SPEAKER_01]: for people

[00:26:24] [SPEAKER_01]: see you tomorrow

[00:26:27] [SPEAKER_03]: seriously like if you don't have

[00:26:29] [SPEAKER_03]: anyone no one a neighbor a church a

[00:26:32] [SPEAKER_03]: spouse family

[00:26:33] [SPEAKER_03]: and like you literally have asked

[00:26:35] [SPEAKER_03]: people and they said no

[00:26:36] [SPEAKER_03]: I will take your kids for two hours

[00:26:38] [SPEAKER_03]: come on bring them over we'll have

[00:26:40] [SPEAKER_03]: the best time

[00:26:41] [SPEAKER_03]: that's very kind and just yeah I

[00:26:43] [SPEAKER_03]: like you said it's nothing is

[00:26:46] [SPEAKER_03]: impossible I love that I think that's

[00:26:47] [SPEAKER_03]: the perfect thing and we are the most

[00:26:51] [SPEAKER_03]: capable people that I know

[00:26:52] [SPEAKER_03]: if you have any questions for Katie or

[00:26:54] [SPEAKER_03]: I or if you want to jump on

[00:26:56] [SPEAKER_03]: an episode with us and chit chat

[00:26:58] [SPEAKER_03]: about this

[00:26:58] [SPEAKER_03]: or if you have any thoughts on the

[00:27:01] [SPEAKER_03]: matter let us know

[00:27:02] [SPEAKER_01]: okay so before we finish I'd love

[00:27:04] [SPEAKER_01]: to share a glimmer of mine

[00:27:07] [SPEAKER_01]: so a beautiful friend in the US who

[00:27:09] [SPEAKER_01]: I've never met but I've met because

[00:27:11] [SPEAKER_01]: she

[00:27:12] [SPEAKER_01]: I've met online because she has two

[00:27:14] [SPEAKER_01]: children who also have a rare disease

[00:27:15] [SPEAKER_01]: a different rare disease and we just

[00:27:17] [SPEAKER_01]: became friends a few years ago

[00:27:19] [SPEAKER_01]: and she she made a beautiful blanket

[00:27:23] [SPEAKER_01]: for my baby and wanted to send it

[00:27:26] [SPEAKER_01]: and she went to the post office in

[00:27:28] [SPEAKER_01]: the US

[00:27:28] [SPEAKER_01]: and they were like it's going to be

[00:27:30] [SPEAKER_01]: about two hundred dollars to send to

[00:27:32] [SPEAKER_01]: the deserts and

[00:27:33] [SPEAKER_01]: and obviously that was not worth it

[00:27:35] [SPEAKER_01]: because the blanket itself

[00:27:37] [SPEAKER_01]: wasn't even worth two hundred

[00:27:38] [SPEAKER_01]: dollars she said I don't know what to

[00:27:39] [SPEAKER_01]: do Katie so

[00:27:40] [SPEAKER_01]: I said about asking in some Facebook

[00:27:43] [SPEAKER_01]: groups and a friend of mine from

[00:27:44] [SPEAKER_01]: Switzerland who's actually American

[00:27:46] [SPEAKER_01]: and she also has a son who has a rare

[00:27:48] [SPEAKER_01]: disease

[00:27:48] [SPEAKER_01]: was in the US at the same time and

[00:27:50] [SPEAKER_01]: she said post it to me

[00:27:51] [SPEAKER_01]: in California so she posted it from

[00:27:54] [SPEAKER_01]: Illinois to California

[00:27:55] [SPEAKER_01]: and she brought it back in her

[00:27:56] [SPEAKER_01]: suitcase to Switzerland for me

[00:27:59] [SPEAKER_01]: and this blanket that was never

[00:28:01] [SPEAKER_01]: going to make it

[00:28:02] [SPEAKER_01]: somehow through this mad network of

[00:28:05] [SPEAKER_01]: rare disease

[00:28:06] [SPEAKER_01]: has made it to Switzerland and I'm

[00:28:07] [SPEAKER_01]: just so grateful

[00:28:09] [SPEAKER_01]: for beautiful people doing wonderful

[00:28:12] [SPEAKER_01]: things

[00:28:13] [SPEAKER_01]: that's my glimmer of the week oh my

[00:28:14] [SPEAKER_03]: gosh I love that you have you should

[00:28:16] [SPEAKER_03]: post a picture of that blanket

[00:28:18] [SPEAKER_01]: I still don't have it yet it's still

[00:28:20] [SPEAKER_01]: but I'm very excited to meet my

[00:28:22] [SPEAKER_01]: friend and

[00:28:23] [SPEAKER_01]: and see this beautiful blanket I'm

[00:28:24] [SPEAKER_01]: really excited awesome how about you

[00:28:26] [SPEAKER_03]: Effie?

[00:28:27] [SPEAKER_03]: Okay well one of my one of my

[00:28:30] [SPEAKER_03]: self-carey mindful things is like

[00:28:32] [SPEAKER_03]: making bread

[00:28:33] [SPEAKER_03]: it makes me think of my mom because

[00:28:34] [SPEAKER_03]: all she did was make everything our

[00:28:36] [SPEAKER_03]: entire lives

[00:28:37] [SPEAKER_03]: so in the last year I've been

[00:28:39] [SPEAKER_03]: making bread which I had never done

[00:28:41] [SPEAKER_03]: as an adult I don't know why all my

[00:28:43] [SPEAKER_03]: siblings are

[00:28:43] [SPEAKER_03]: maniacs and they all make bread and

[00:28:45] [SPEAKER_03]: cook like crazy

[00:28:46] [SPEAKER_03]: and I was like oh my gosh I'm gonna

[00:28:48] [SPEAKER_03]: make bread again I miss my mom

[00:28:50] [SPEAKER_03]: so I've just been like googling or

[00:28:52] [SPEAKER_03]: not googling I just go on TikTok

[00:28:53] [SPEAKER_03]: and I type in bread recipes and I

[00:28:55] [SPEAKER_03]: click whichever one looks

[00:28:56] [SPEAKER_03]: good and I've been trying to

[00:28:57] [SPEAKER_03]: perfect my

[00:29:00] [SPEAKER_03]: focaccia because I don't know

[00:29:02] [SPEAKER_03]: something about it like I'm not

[00:29:03] [SPEAKER_03]: waiting long enough for it because

[00:29:04] [SPEAKER_03]: I get too

[00:29:05] [SPEAKER_03]: fancy but I nailed it the other day

[00:29:07] [SPEAKER_03]: like totally nailed it and I found a

[00:29:09] [SPEAKER_03]: recipe that you can do in the same

[00:29:11] [SPEAKER_03]: day which was totally my jam

[00:29:13] [SPEAKER_03]: and I was so proud of myself I don't

[00:29:17] [SPEAKER_03]: know what I did differently I'm

[00:29:18] [SPEAKER_03]: wondering if maybe my yeast was not

[00:29:20] [SPEAKER_03]: that great because I got new stuff

[00:29:21] [SPEAKER_03]: but it was the crispiest fluffiest

[00:29:24] [SPEAKER_03]: most beautiful focaccia I had ever

[00:29:27] [SPEAKER_03]: made and now I just want to make

[00:29:29] [SPEAKER_03]: it for everyone on my street and hand

[00:29:31] [SPEAKER_03]: it out and let them know how good my

[00:29:33] [SPEAKER_03]: focaccia is

[00:29:34] [SPEAKER_03]: you need some focaccia come on over

[00:29:36] [SPEAKER_01]: focaccia and child care you're

[00:29:38] [SPEAKER_01]: offering a lot here

[00:29:40] [SPEAKER_01]: my mouth is actually watering that

[00:29:42] [SPEAKER_02]: sounds so good

[00:29:43] [SPEAKER_01]: okay well I love you

[00:29:45] [SPEAKER_01]: yeah and just before we finish I

[00:29:46] [SPEAKER_01]: would just say you know to anyone

[00:29:48] [SPEAKER_01]: listening if you

[00:29:50] [SPEAKER_01]: you want to share a glimmer with

[00:29:51] [SPEAKER_01]: us you can always do that

[00:29:54] [SPEAKER_01]: and we'd love to hear them

[00:29:56] [SPEAKER_03]: yeah send it to either of our

[00:29:58] [SPEAKER_03]: dms or go to my website there's a

[00:30:01] [SPEAKER_03]: place that says contact us and then

[00:30:02] [SPEAKER_03]: record a voice message you can send

[00:30:04] [SPEAKER_03]: it that way too and then if you send

[00:30:06] [SPEAKER_03]: a voice message we'll just stitch it

[00:30:08] [SPEAKER_03]: into the show

[00:30:08] [SPEAKER_03]: let's do it and a whole episode of

[00:30:10] [SPEAKER_03]: glimmers would be amazing

[00:30:13] [SPEAKER_03]: yes oh I'll make an email about that

[00:30:15] [SPEAKER_03]: today perfect and send it out

[00:30:18] [SPEAKER_03]: okay all right Katie love you

[00:30:20] [SPEAKER_03]: FB thank you for this I hope you get

[00:30:21] [SPEAKER_03]: some sleep tonight I love you too

[00:30:23] [SPEAKER_03]: try to rest you too I hope you've

[00:30:26] [SPEAKER_03]: been enjoying this podcast

[00:30:27] [SPEAKER_03]: if you like what you hear please

[00:30:29] [SPEAKER_03]: share this show with your people

[00:30:31] [SPEAKER_03]: and please make sure to rate and review

[00:30:33] [SPEAKER_03]: on iTunes or wherever you get your

[00:30:35] [SPEAKER_03]: podcasts you can also head over to

[00:30:38] [SPEAKER_03]: Instagram Facebook and Twitter to

[00:30:40] [SPEAKER_03]: connect with me and stay updated on

[00:30:41] [SPEAKER_03]: the show if you're interested in

[00:30:44] [SPEAKER_03]: sharing your story or if you have

[00:30:45] [SPEAKER_03]: anything you would like to contribute

[00:30:47] [SPEAKER_03]: please submit it to my website at

[00:30:49] [SPEAKER_03]: effiparks.com thank you so much for

[00:30:52] [SPEAKER_03]: listening to the show and for

[00:30:54] [SPEAKER_03]: supporting me along the way I

[00:30:55] [SPEAKER_03]: appreciate y'all so much

[00:30:56] [SPEAKER_03]: I don't know what kind of day

[00:30:58] [SPEAKER_03]: you're having but if you need a

[00:30:59] [SPEAKER_03]: little pick me up

[00:31:00] [SPEAKER_03]: I've got you