David Fajgenbaum - Chasing My Cure - A Doctor's Race to Turn Hope into Action
David Fajgenbaum, MD, MBA, MSc, is a groundbreaking physician-scientist, disease hunter, speaker, and author of the national bestselling memoir, Chasing My Cure: A Doctor's Race to Turn Hope Into Action.
EPISODE HIGHLIGHTS
Can you tell us about your diagnosis of idiopathic multicentric castleman disease (IMCD)?
What were your symptoms and how quickly were you hospitalized?
How did you eventually get a diagnosis?
What incentives need to be in place to encourage researchers and doctors to explore drug repurposing?
At what moment did you realize you had found a potential solution for you?
You created a first-of-its-kind program in memory of your mom for young people grieving the loss of a parent. Can you tell us more about that?
What can you share with people who are impacted by a rare disease that don't have a lot of patients, money or organization?
LINKS AND RESOURCES MENTIONED
https://healgrief.org/actively-moving-forward/
TUNE INTO THE ONCE UPON A GENE PODCAST
CONNECT WITH EFFIE PARKS
https://twitter.com/OnceUponAGene
https://www.instagram.com/onceuponagene.podcast/?hl=en