Episode Description: In this warm and deeply honest conversation, I sit down with my sweet friend Brittni Lamb — a sunshine-loving mama in Arizona raising two daughters and her adorable son Jameson, who has the ultra-rare Hereditary Spastic Paraplegia SPG3A.
Brittni shares the raw season after Jameson’s diagnosis when grief, loneliness, and hopelessness felt all-consuming. She talks about crying herself to sleep, walking through the days in a fog, and the heavy mom guilt she carried. Then she opens up about the slow, beautiful healing that came through daily surrender, faith, weight training, community with other special needs moms, and choosing to notice the “glimmers” of joy with her family.
We talk about what surrender really looked like in her body and her home, how she’s learning to care for herself so she can show up for her kids, the unique bond she shares with Jameson, and why her hope is now anchored in heaven — where she dreams of one day seeing Jameson walking, running, and jumping with a brand-new body.
This episode is full of gentle wisdom, real talk about grief, and encouragement that joy and hope really can return after the darkest days.
Topics Covered:
- The darkest days after diagnosis and what hopelessness felt like
- The moment surrender changed everything
- How weight training became part of her mental + physical healing
- Finding and clinging to glimmers of joy
- Raising siblings alongside a child with disabilities
- Faith, grief, and anchoring hope in heaven
Connect with Brittni: Instagram: @brittnikarina @preppedaz
If this episode touched you, please share it with another rare disease or special needs parent who needs to hear that they’re not alone — and that hope can come back. 💛
Thanks for listening!