Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival

ONCE UPON A GENE - EPISODE 028

Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival

Bo Bigelow is the co-founder of Disorder: The Rare Disease Film Festival. He's joining today to talk about life in quarantine and his beautiful daughter Tess, who inspired him to produce a podcast, Stronger Everyday. 

LINKS AND RESOURCES MENTIONED

Disorder: The Rare Disease Film Festival

https://www.rarediseasefilmfestival.com/

Episode 15: Films and Fatherhood with Daniel DeFabio

https://effieparks.com/podcast/008-tanjs-akayy-jr78y-ja2e8-zanza-njkxy

Stronger Everyday Podcast

http://www.portlandrootsmedia.com/strongerpodcast

Discovering new diseases with the internet: How to find a matching patient

http://matt.might.net/articles/rare-disease-internet-matchmaking/

Foundation for USP7 Related Diseases

https://www.usp7.org/

TUNE INTO THE ONCE UPON A GENE PODCAST

Spotify

https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7

Apple Podcasts

https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347

Stitcher

https://www.stitcher.com/podcast/once-upon-a-gene

Overcast

https://overcast.fm/itunes1485249347/once-upon-a-gene

CONNECT WITH EFFIE PARKS

Website

https://effieparks.com/

Twitter

https://twitter.com/OnceUponAGene

Instagram

https://www.instagram.com/onceuponagene.podcast